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Thread-Topic: April 2016 Fabry Disease Awareness  Month
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Subject: April 2016 Fabry Disease Awareness  Month
Date: Tue, 1 Mar 2016 18:45:18 -0500
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<APP>CUSTOM
<PREFIX>Mr.</PREFIX>
<FIRST>Shane</FIRST>
<MIDDLE></MIDDLE>
<LAST>Benson</LAST>
<SUFFIX></SUFFIX>
<TITLE>Member/SC Representative for the National Fabry Disease Foundation behal</TITLE>
<ORGANIZATION>National Fabry Disease Foundation</ORGANIZATION>
<ADDR1>235 Laurel Meadows Drive</ADDR1>
<ADDR2></ADDR2>
<CITY>West Columbia</CITY>
<STATE>SC</STATE>
<ZIP>29169</ZIP>
<EMAIL>shanebenson@gmail.com</EMAIL>
<PHONE_H>803-479-4553</PHONE_H>
<PHONE_B></PHONE_B>
<ISSUE>PROC</ISSUE>
<SUBJECT>April 2016 Fabry Disease Awareness  Month</SUBJECT>
<CUSTOM1>209.65.105.100</CUSTOM1>
<MSG>
WHEREAS, Fabry disease is a progressive, destructive disorder that causes people to have many symptoms that diminish quality of life and may lead to premature death due to heart attacks, strokes and kidney failure; and
WHEREAS, Fabry disease is caused by deficient activity of the lysosomal enzyme alpha-galactosidase A that results in harmful buildup of lipids in the body; and 
WHEREAS, there is treatment available but the disease is severely under-diagnosed or is not diagnosed until after irreversible organ damage occurs; and
WHEREAS, Fabry disease is estimated to occur in about 1 in 40,000 to 60,000 males. As many as twice this number of females may be affected but with more varied symptoms than males; and 
WHEREAS, newborn screening programs reveal that many more babies are born with Fabry disease than historical estimates indicate; and 
WHEREAS, health care providers and families should be aware of disease symptoms and if suspected, obtain a GLA gene test to detect Fabry disease;



</MSG>

</APP>