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Thread-Topic: Dandy-Walker and Hydrocephalus Awareness Month
From: <governor.haley@sc.lmhostediq.com>
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Subject: Dandy-Walker and Hydrocephalus Awareness Month
Date: Thu, 12 Mar 2015 15:10:23 -0400
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<APP>CUSTOM
<PREFIX>Mrs.</PREFIX>
<FIRST>April</FIRST>
<MIDDLE>E</MIDDLE>
<LAST>Nadler</LAST>
<SUFFIX></SUFFIX>
<TITLE></TITLE>
<ORGANIZATION>The Dandy-Walker Alliance Inc</ORGANIZATION>
<ADDR1>17037 West Nobblett Rd</ADDR1>
<ADDR2></ADDR2>
<CITY>Hagerstown</CITY>
<STATE>IN</STATE>
<ZIP>47346</ZIP>
<EMAIL>elisanadler@hotmail.com</EMAIL>
<PHONE_H>765-546-7124</PHONE_H>
<PHONE_B></PHONE_B>
<ISSUE>PROC</ISSUE>
<SUBJECT>Dandy-Walker and Hydrocephalus Awareness Month</SUBJECT>
<MSG>
May 2015 is Dandy-Walker and Hydrocephalus Month for many states and we would like South Carolina to help families touched by these syndromes as well; below is the language for the proclamation should you wish to help us in raising awareness. Thank you in advance.

Whereas, The Dandy-Walker Alliance-Inc., is a nonprofit corporation and the only national organization focusing on promoting the public good and education, informational activities and non-partisan research that increase public awareness of the congenital birth defect known as Dandy-Walker Syndrome; and

Whereas, Dandy-Walker Syndrome is the most common congenital malformation of the cerebellum and its cause is largely unknown. Between 10,000 and 40,000 people have Dandy-Walker Syndrome in the United States; and

Whereas, The incidence of Dandy-Walker Syndrome is at least 1 case per every 2500 live births; however this is likely a significant underestimate because of difficulties diagnosing the syndrome. Patience with Dandy-Walker Syndrome present with developmental delays, enlarged head circumference, or signs and symptoms of hydrocephalus; and

Whereas, All Americans should learn about Dandy-Walker Syndrome and Hydrocephalus and recognize the achievements of all Americans with disabilities, the important role that disabled Americans have played throughout the history of the United States and the scientific, literary, and social impact of disabled Americans on our world today.

</MSG>

</APP>