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Thread-Topic: I ask South Carolina to join the Nation in raising awareness of Myositis with this Myositis Awareness Month, May 2016 Proclamation
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To: <governor.haley@sc.lmhostediq.com>
Subject: I ask South Carolina to join the Nation in raising awareness of Myositis with this Myositis Awareness Month, May 2016 Proclamation
Date: Thu, 24 Mar 2016 23:41:37 -0400
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<APP>CUSTOM
<PREFIX>Mrs</PREFIX>
<FIRST>Linda</FIRST>
<MIDDLE>M</MIDDLE>
<LAST>Hedleston</LAST>
<SUFFIX></SUFFIX>
<TITLE></TITLE>
<ORGANIZATION>Myositis Support and Understanding</ORGANIZATION>
<ADDR1>507 Hildebrand Dr</ADDR1>
<ADDR2></ADDR2>
<CITY>Bonneau</CITY>
<STATE>SC</STATE>
<ZIP>29431</ZIP>
<EMAIL>LindaHedleston@gmail.com</EMAIL>
<PHONE_H>8436965696</PHONE_H>
<PHONE_B>8436965696</PHONE_B>
<ISSUE>PROC</ISSUE>
<SUBJECT>I ask South Carolina to join the Nation in raising awareness of Myositis with this Myositis Awareness Month, May 2016 Proclamation</SUBJECT>
<CUSTOM1>184.61.107.212</CUSTOM1>
<MSG>
Whereas Myositis is a general term describing a number of Idiopathic Inflammatory Myopathies, which are rare diseases affecting only 50-75k people in the United States and are thought to be autoimmune in nature causing muscle weakness, inflammation, pain, skin rashes, lung disease, impairment in swallowing, and life-altering fatigue; and
Whereas There is no cure for any form of Myositis and very few and limited treatment options, which can have harsh side effects; and
Whereas For patients to have the best chance of remission and overall outcome, it is recommended that treatment begin within weeks of symptom onset or diagnosis. Partly due to the rarity of Myositis, and partly due to its similarities to other conditions, a diagnosis is often delayed or misdiagnosed causing treatment postponement that may lead to permanent muscle loss and disability; and
Whereas Education and support for patients, caregivers, and healthcare providers is essential to the overall health of patients; and
Whereas Myositis can affect both children and adults of all ages with symptoms developing over weeks, months, or years while often mimicking other less-rare diseases; and
Whereas Raising awareness and funding are important factors in advancing research, developing new, less damaging treatments, and reaching towards the ultimate goal of finding a cure for Myositis;and
The State of South Carolina would like to join the Nation in raising awareness of Myositis

</MSG>

</APP>