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Thread-Topic: Cystic Fibrosis Awareness Month
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<APP>CUSTOM
<PREFIX>Ms.</PREFIX>
<FIRST>Sara</FIRST>
<MIDDLE></MIDDLE>
<LAST>Hendrix</LAST>
<SUFFIX></SUFFIX>
<TITLE>Clinical Dietitian</TITLE>
<ORGANIZATION>Medical University of South Carolina Cystic Fibrosis Center</ORGANIZATION>
<ADDR1>165 Ashley Avenue</ADDR1>
<ADDR2>EH 110B, MSC 905</ADDR2>
<CITY>Charleston</CITY>
<STATE>SC</STATE>
<ZIP>29425</ZIP>
<EMAIL>hendrs@musc.edu</EMAIL>
<PHONE_H>843-408-5694</PHONE_H>
<PHONE_B>843-792-9002</PHONE_B>
<ISSUE>PROC</ISSUE>
<SUBJECT>Cystic Fibrosis Awareness Month</SUBJECT>
<CUSTOM1>128.23.61.94</CUSTOM1>
<MSG>
State of South Carolina
Governor's Proclamation

WHEREAS, cystic fibrosis, commonly referred to as "CF," is a genetic disease affecting approximately 30,000 children and adults in the United States and nearly 70,000 children and adults worldwide, 381 of whom live in South Carolina; and
WHEREAS, cystic fibrosis is the most common fatal genetic disease in North America; and

WHEREAS, A defective gene causes the body to produce an abnormally thick, sticky mucus that blocks small tubes and ducts in the respiratory, reproductive and digestive systems, often leading to chronic life-threatening infections, malnutrition and progressive lung damage; and
WHEREAS, Most people associate CF with lung disease, it is systemic, impacting the sinuses, liver, pancreas, and reproductive system; and
WHEREAS, More than 10 million Americans are symptomless carriers of the defective CF gene, and CF occurs in approximately one of every 3,500 live births in the United States; and
WHEREAS, The median age of survival for a person with CF is 41 years; and the median age of death is 29 years; and

WHEREAS, With advances in the diagnosis and treatment of CF, the number of adults with CF has steadily grown, and approximately 900 new cases of CF are diagnosed each year; and

WHEREAS, 50% of the CF population is 18 years of age and older, and people with CF have a variety of symptoms attributed to the more than 1,800 mutations of the CF gene; and
WHEREAS, Infant blood screening to detect genetic defects is the most reliable and least costly method to identify persons likely to have CF; and

WHEREAS, Early diagnosis of CF permits early treatment and enhances quality of life and longevity and the treatment of CF depends on the stage of the disease and the organs involved; and

WHEREAS, Clearing mucus from the lungs is an important part of the daily CF treatment regimen, and other types of treatments include inhaled antibiotics and pancreatic enzymes, among others; and
WHEREAS, There are 3 CF Foundation-accredited pediatric centers and 1 CF Foundation-accredited adult center in South Carolina which specialize in the diagnosis of CF and the care of persons with CF; 

WHEREAS, A critical component of treating patients with CF includes access to innovative treatments, which can play a crucial role in the lives of patients with CF; and

WHEREAS, Improving the length and quality of life for people with CF starts with awareness; therefore be it

NOW, THEREFORE I, Nikki R. Hayley, Governor of the Great State of South Carolina, do hereby proclaim May 2016 as

CYSTIC FIBROSIS AWARENESS MONTH

throughout the state and encourage all South Carolinians to help raise awareness and support research of this disease. 

</MSG>

</APP>