x-sender: governor.haley@sc.lmhostediq.com x-receiver: governor.haley@sc.lmhostediq.com Received: from mail pickup service by sc.lmhostediq.com with Microsoft SMTPSVC; Sun, 20 Mar 2016 23:46:49 -0400 thread-index: AdGDJEwRw7KjbVPURSSCiBXSFxT/jQ== Thread-Topic: Response via eform 100002 - Help with a State Agency From: To: Subject: Response via eform 100002 - Help with a State Agency Date: Sun, 20 Mar 2016 23:46:48 -0400 Message-ID: MIME-Version: 1.0 Content-Type: text/plain; charset="iso-8859-1" Content-Transfer-Encoding: 7bit X-Mailer: Microsoft CDO for Windows 2000 Content-Class: urn:content-classes:message Importance: normal Priority: normal X-MimeOLE: Produced By Microsoft MimeOLE V6.1.7601.17609 X-OriginalArrivalTime: 21 Mar 2016 03:46:49.0047 (UTC) FILETIME=[4C2C0670:01D18324] WORKFLOW 344 Mr. cameron T Brady None None P.O. Box 309 10511 Hwy 81 South Iva SC 29655 softballmom70@yahoo.com 8643486091 864642-7817 Cameron T. Brady P.O. Box 309 Iva, SC 29655 March 20, 2016 The Honorable Nikki R. Haley Office of the Governor 1205 Pendleton Street Columbia, South Carolina 29201 Subject: Cyclic Vomiting Syndrome Dear Honorable Nikki Haley, My name is Cameron Tyler Brady. I am 24 years old and need your help. I became sick at the age of 15. I have been to several doctors. I have been diagnosed with Cyclic Vomiting Syndrome - (CVS). There is no cure for this and all they can do for me is treat the symptoms. I also suffer with Anxiety, Insomnia, Depression, and BiPolar. Cyclic vomiting syndrome, sometimes referred to as CVS, is an increasingly recognized disorder with sudden, repeated attacks-also called episodes-of severe nausea, vomiting, and physical exhaustion that occur with no apparent cause. The episodes can last from a few hours to several days. Episodes can be so severe that a person has to stay in bed for days, unable to go to school or work. A person may need treatment at an emergency room or a hospital during episodes. After an episode, a person usually experiences symptom-free periods lasting a few weeks to several months. To people who have the disorder, as well as their family members and friends, cyclic vomiting syndrome can be disruptive and frightening. The disorder can affect a person for months, years, or decades. Each episode of cyclic vomiting syndrome is usually similar to previous ones, meaning that episodes tend to start at the same time of day, last the same length of time, and occur with the same symptoms and level of intensity. http://www.niddk.nih.gov/health-information/health-topics/digestive-diseases/cyclic-vomiting-syndrome/Pages/facts.aspx When I was first diagnosed I wanted other opinions. I have been diagnosed by three differernt doctors. Dr. Alboro, my primary physician in Iva, SC. Dr. Sheikh, my gastroenterologist in Anderson, SC. I also saw a doctor at Emory in Georgia. My heart doctor is Dr. Jeremy Parker, Anderson, SC. They all agree I have CVS. I have had over 150 Emergency room visits at An-Med in Anderson, SC and Abbeville Memorial, Abbeville SC. It's sad but we keep a bag packed in the car for the hospital. I never know when an episode will start. It starts with extreme pain in the stomach and then vomitting for hours and days at a time. I have started to try my best to get thru my sickness at home with medication. The pain medication at the hospitals are so addictive and I don't need another problem. This sickness has ruined my life. Before I became sick, I had many friends and was very active. But once I became sick and couldn't go out and do things, they disappeared. I have become so depressed and my anxiety is terrible. I have no social life and no self worth. I feel useless and guilty for something I have no control over. I never leave the house except for Doctor's appts. I am so terrified of getting sick. I have to pace myself. If my body temperature changes, I can get sick. If I get stressed it can bring on an episode. The dr's have me on medications. Once I start vomiting I get so dehydrated and loose all my potassium. I have tachacardia and if my heart starts racing I will have a episode. My grandparents live next door. I rarely go up there because they keep their house much hotter than ours and that will make me sick. I have become a prisoner in my own home. Sometimes I get so angry and depressed due to my condition. Before I got sick, I had the prettiest teeth. Now I look like a meth head. My teeth hurt me so bad. The acid from the vomiting have eaten away all the enamel. I can't find anyone to help me with my teeth. I had a girlfriend for 3 years but she could not handle my sickness. I have tried to work but have lost jobs because I get sick for days. I have aspirated and ended up in ICU on a ventilator. My mother found me one night and had to do CPR on me. I am embarrased to say it but it has got so bad at times I have tried to take my own life. This not only affects me but my mom and the whole family. My mom is a single mom and she is disabled. She is trying her best to keep us up but the money does not go far enough. This is not fair to her. At the age of 24, she should not be keeping me up. I worry about her. I have applied for SSI one time and was denied. This is my second time applying. I really need help so I can atleast help pay my part. I want my life back. There is nothing I love that CVS has not taken away from me. I sit at home all day in my room. All I do is watch TV, Play playstion. This is not a life. I hate it. My prayer each night is for God to heal me and let me return to my life. I know there is someone out there that can help me. Just being able to help my mom financially would take so much stress off me. I am listing my doctors for you in case you want to see my charts. Dr. Alburo P.O. Box 267 Iva, SC 29655 (864) 348-6122 Gastroenterology Specialist Dr. Sheikh 2000 E. Greenville Street Suite 2900 Anderson, SC 29621 (864) 224-1692 Dr. Jeremy Parker 100 Healthy Way Suite 1250 Anderson, SC 29621 My current medications are Amitiza 24 mcg 1pill 2xday as needed Amitriptyline 150 mg 1 @ night Klonopin 1 mg 1 2xday as needed Coenzyme Q10 200 mg 1 pill 2 x day Depakote 500 mg 4 pills a day Lexapro 10 mg 1 Daily Metoprolol 25mg 2 x day Prilosec 20 mg 2 x day Trileptal 300mg 2 x day Phenegran 25 mg 1 every 4 hrs as needed Saphris 5mg 2 x day Triamcinolone Cream Apply daily If you can't help us with the SSI process, then please pray for us. If you don't know much about CVS, please look into it. People need to be aware how real this is. This is a poem of how I feel: ME NOW I've always had a smile The smile is now fake. I've always had hope But hope fades daily. I've always had answers but now all questions. I've always been the helper now I am the helpless. I've always felt I was a good son, brother, nephew, grandson and uncle. Now I feel like a burden. God, please help me. I want my life back. Thank you so much for taking you time out to read this. Sincerely, Cameron T. Brady 204.116.236.72